BY THE YEAR
FIRST SIGNS
Mum began to notice that Olezhik was finding it difficult to climb the stairs on his own.
This is Oleg Ryhan
It takes two minutes to understand why it’s so important for his family to make it in time
A message from the head of the fund
In our country, there are still children whose suffering is no less real; it is simply less visible
Vitaliy Sokol – Director of the International Charitable Foundation ‘Development of Our City’
FIRST OF ALL — JUST GET TO KNOW OLEG
He is seven. He is cheerful, energetic and very determined. If Oleg wants something, he’ll do whatever it takes to get it.
He loves animals, the swimming pool, Roblox, *Paw Patrol* and, most of all, playing in the sand.
But there’s one thing Oleg dreams of more than anything else:
RUNNING WITH THE CHILDREN.
A MESSAGE FROM OLEG’S MUM
TODAY, OLEG CAN STILL DO IT,
BUT SOME THINGS ARE ALREADY BECOMING MORE DIFFICULT
To run
To hug Mum
Playing with pets
FOR THREE YEARS, THE FAMILY SEARCHED FOR AN ANSWER
Mum first noticed the changes when Oleg was still very young.
THE NEXT THREE YEARS
SEARCHING FOR AN ANSWER
The family consulted various doctors.
‘It’ll all pass. It’ll blow over.’
AT THE AGE OF FOUR
DIAGNOSIS
During a consultation with a paediatric neurologist, the family finally received a diagnosis:
Duchenne muscular dystrophy
‘Unfortunately, I’m sorry…’
At that moment, Mum heard something she could never have been prepared for.
TODAY
OLEG IS SEVEN YEARS OLD
He eats, plays and walks on his own.
However, according to her mum, the changes are becoming increasingly noticeable: she is feeling tired and weak, and finds it harder to run and climb stairs.
AT THAT TIME, THE FAMILY WAS LOOKING FOR ANSWERS.
NOW SHE IS LOOKING FOR A WAY TO MAKE IT IN TIME.
Oleg can still walk unaided today. And that is precisely why time is of the essence.
THIS IS NOT JUST ONE CHILD’S JOURNEY
Oleg’s mum is by his side every day. By his mum’s side are his grandmother, his little sister Bohdana, his brother and other close relatives. Since the diagnosis, the family’s life has changed completely. His mum had to give up her job to be there for her son.
But at home, Oleg is still the same cheerful boy.
‘WHAT I FEAR MOST IS NOT HAVING ENOUGH TIME’
An interview with Olga – Oleg’s mum
WHAT OLEG NEEDS RIGHT NOW
Oleg’s family are raising funds for gene therapy, which, according to his mother, has been recommended by doctors abroad.
THE MAIN FACTOR RIGHT NOW IS TIME.
According to the family, the doctors recommend not delaying treatment, and it is particularly important for Oleg to remain as physically active as possible.
DIAGNOSIS
Duchenne muscular dystrophy
A progressive genetic disorder that affects muscle strength and mobility.
NECESSARY TREATMENT
Gene therapy
In accordance with the medical advice received by the family.
COST
$2 902 000
The estimated cost of treatment, according to the family.
Diagnoses, medical reports and information regarding treatment are available for verification.
EVERYTHING YOU NEED TO CHECK
We understand the scale of the sum involved. That is why the documents relating to the diagnosis, treatment and flow of funds are available for inspection.
FOR MOST OF US, IT’S JUST A STEP
FOR OLEG, THIS IS WHAT WE WANT TO PRESERVE
YOUR BUSINESS COULD
TAKE A BIG STEP FORWARD
Raising $2,902,000 requires more than just mass donations.
We are looking for companies willing to contribute towards the target and to involve their teams, clients and partners in the campaign.
Become a partner of the foundation
The fundraiser has already received support
OLEG DREAMS
OF RUNNING WITH THE CHILDREN!
Today, he’s still walking on his own.
Let’s help him keep going!
Compiled
$973 000
Remaining
$1 929 000
Oleg’s mum’s bank details:
USD: Account number: UA873220010000026005700020584Legal entity: Charitable Organisation ‘Olezhika Rigan Charitable Foundation’Tax ID : 46340762
Bank details:Legal entity’s bank: JSC “UNIVERSAL BANK”Bank ID: 21133352MFO code: 322001
Contact number:Olga Rygan +38(050)708-15-40
A single step can be part of a long journey.